Parents give away £22,500 from sick daughter's fund to help another child they've never metWales News Service


It's a gesture that almost defies superlatives in its generosity. A couple who have been raising thousands of pounds to save the life of their daughter have given the money away – to a sick child they have never met.

Christine and Kevin Williams hoped the £22,500 they had raised would pay for successful stem cell treatment for their seven-year-old daughter Abigail, who suffers from fatal Batten's disease.

But they have been told her condition is incurable and paying thousands for any further procedures would be futile. And so, in an incredible act of kindheartedness, they have decided to donate the money to help toddler Kyle Weaver, three, walk for the first time.

Kevin said: "It's not fair for us to have £22,500 sitting in a bank while hoping for a cure that may never come, while another little boy is sick and needs the money for an operation.

"So we hope Kyle's family can make good use of the money."

Kevin and Christine launched 'Abigail's Fund' to raise cash for their little girl who has the rare Batten's disease which affects her mobility and senses and is often fatal by the late teens or twenties.

She underwent unsuccessful stem cell therapy in China and the family hoped she could have further treatment in America.

Parents give away £22,500 from sick daughter's fund to help another child they've never metWales News Service


But they have now decided to end Abigail's treatment and give cash from the fund to cerebral palsy sufferer Kyle.

Kevin, of Conwy, North Wales, said: "She's just not well enough. Unfortunately, the last 12 months Abigail has got a lot more poorly.

"We still owe a large debt of gratitude to the public for what they did for Abigail.

"It's Kyle's money now. His needs are more imminent than Abigail's. Hopefully people who donated will understand."

Kyle's parents Simon and Samantha Weaver, who live 10 miles away in Llysfaen, North Wales, said they were 'stunned' by the generous donation.

They are trying to raise £58,000 for little Kyle to have an operation in America to help him walk.

Simon, 36, said: "We are shocked, astounded and amazed at the Williams' generosity. We can really get going with the surgery now.

"But we have mixed emotions. They have helped us and I wish we could help them, but there's nothing we can do."

The donation to Kyle's Miracle Wish Fund means his operation at the St Louis Children's Hospital in Missouri will now go ahead on May 21. A team will cut Kyle's spinal cord and re-attach it to his legs to improve his mobility in a procedure called selective dorsal rhizotomy.

Simon said: "The operation itself will cost £28,000 and the physio in America will cost £3,000 plus the cost of flights and hotels to stay there for five or six weeks.

"This huge donation will make a huge difference to us."

What amazing people.